Stanislaw, Streisand and Spartacus

In response to a critical Quackometer post regarding the Burzynski Clinic, Andy Lewis received an email from ‘Marc Stephens’, claiming to represent the clinic and asking that he remove the post.

This was of particular interest to me, since I had written a very similar post myself just two days later.

Although Stephens does not appear to be a lawyer and, to put it mildly, does not come across in the most professional way, he did say:

This correspondence constitutes a demand that you immediately cease and desist in your actions defaming and libeling my clients.

This would have been enough to persuade many people to take down the post – as presumably happened in this case*.

Andy’s actual response was rather different. He decided to go the Ratbags route, left the post online and published his email exchange with Stephens in full (here and here).

I am hugely impressed and relieved by this as I’m not sure I would have had the guts to do this myself, had Stephens approached me first. But I certainly would now.

(EDIT 28/11/11 It has now come to light  that Rhys Morgan – a prominent UK blogger who is still in high school, had also received intimidating emails. Details of these are here.)

The likelihood of Stephens contacting me now seems to be getting ever smaller. Critical Burzynski posts are popping up all over the internet almost faster than I can read them.





Despite his confident assertion that Quackwatch, Ratbags, and the rest of you Skeptics days are numbered, surely Mr Stephens will not be able to deal with us all individually?

You will find a growing list of new Burzynski posts here), where anarchic teapot points out the perils of unleashing the Streisand Effect.

Here is a list of my own:

  1. Ducks are nuthin’ but trouble anarchic teapot, Short and Spiky,  24/11/11
  2. Burzynski Clinic Threatens Blogger jdc325, Stuff and Nonsense, 24/11/11
  3. The Burzynski Clinic Guy Chapman, Guy Chapman’s Blahg, 24/11/11
  4. Not Everyone Cares About Cancer On the MEND, 24/11/11
  5. Threats from the Burzynski Clinic Kulvinder Singh Matharu, Matharu’s Rants and Raves, 24/11/11
  6. Burzynski Clinic Issues Legal Threats Against Bloggers The Twenty-First Floor, 24/11/11
  7. The Burzynski clinic has ever so many trials Jo Brodie, Stuff that occurs to me, 24/11/11
  8. Burzynski Clinic Quackery Richer Ramblings, 24/11/11
  9. Burzynski Clinic Bullies Bloggers with Legal Threats (Major update) idoubtit, Doubtful Newsblog, 24/11/11
  10. A letter to the Observer Tannice, Skepticos, 25/11/11
  11. The weird world of US ethics regulation Professor Dorothy Bishop, BishopBlog, 25/11/11
  12. The Burzynski Clinic Adam Jacobs, Dianthus Medical, 25/11/11
  13. Stanislaw, Streisand and Spartacus, Josephine Jones,25/11/11
  14. Dear Observer …………… Nucella, 25/11/11
  15. Skeptic News: Burzynski Petition Keir Liddle, The Twenty-First Floor, 25/11/11
  16. A little dose of hemp will cure everything PZ Myers, Pharyngula, 25/11/11
  17. Taking the piss Anthony Cox, Black Triangle 25/11/11
  18. Hope or false hope? Kat Arney, Science Update blog, Cancer Research UK, 25/11/11
  19. A P.R. flack from the Burzynski Clinic threatens a skeptical blogger Orac, Respectful Insolence, 25/11/11
  20. Is the Burzynski Clinic threatening critics? White Coat Underground, 25/11/11
  21. Evidence? Burzynski don’t need no stinkin’ evidence writerJames, Cubik’s Rube, 25/11/11
  22. A PR Flack for Cancer Quack Attempts to Bully Skeptic Blogger. Ridicule Ensues I Speak of Dreams, 25/11/11
  23. #Burzynski tweets from 18 November onwards Jo Brodie, chirpstory 25/11/11
  24. #Burzynski tweets minus the RTs – streamlined version Jo Brodie, chirpstory 25/11/11
  25. A Reply from The Observer. Nucella, 25/11/11
  26. On The Burzynski Clinic Issuing Legal Threats Against Bloggers – Support The Streisand Effect Kylie Sturgess, Token Skeptic, 26/11/11
  27. The cruelty of the Burzynski Clinic must be stopped. Come on, Marc Stephens, make my day Professor David Colquhoun, DC’s Improbable Science, 26/11/11
  28. Big business in Texas Zeno, Zeno’s Blog, 26/11/11
  29. Another frothy threat from Burzynski’s alleged representative. Lot’s of RED ARROWS. Andy Lewis, lecanardnoir.posterous.com, 26/11/11
  30. Is Marc Stephens Really A Representative Of Burzynski? beatis, Anaximperator blog, 26/11/11
  31. Ein Blogger, Krebs und Radiohead merdeister, dieausrufer.wordpress.com, 26/11/11
  32. Stanislaw Burzynski’s public record RJB, Skeptical Humanities 26/11/11
  33. Merchant of Hope. The Demon Haunted World, 26/11/11
  34. Burzynski bastardry continues/But wait, there’s more!/And even more …  Peter Bowditch, The Millenium Project, 26/11/11
  35. But wait, there’s more! (the ‘Red Arrows’ email in full) Peter Bowditch, The Millenium Project, 26/11/11
  36. Response to the Accusations of Marc Stephens The Twenty-First Floor, 26/11/11
  37. LETZTE WARNUNG: Denken Sie an Frau und Kind, enfernen Sie den Blogeintrag EsoWatch, 27/11/11
  38. The ones Burzynski doesn’t boast about anarchic teapot, Short and Spiky, 27/11/11
  39. False hope and real living Dr Margaret McCartney, Margaret McCartney’s blog, 27/11/11
  40. Quack, quack…. The Jobbing Doctor, 27/11/11
  41. Weekly round-up w/e 27/11/11 Birmingham Skeptics, 27/11/11
  42. Bloggers react as leading quackbuster is threatened with libel over exposé of charlatan cancer claims Richard Wilson, Richard Wilson’s blog, 27/11/11
  43. Some libel silliness David Allen Green, Jack of Kent, 27/11/11
  44. Emails regarding the Burzynski Clinic not published in The Observer Josephine Jones, 27/11/11
  45. I am Spartacus (allegedly) #Burzynski Kevin Bradshaw, I Blog Every Day, 27/11/11
  46. Analysing Burzynski Adam Cuerden, The Twenty-First Floor, 27/11/11
  47. Stanislaw Burzynski: Bad medicine, a bad movie, and bad P.R. David Gorski, Science-Based Medicine, 28/11/11 (also here)
  48. Beware the Cancer Quack  Unity, Ministry of Truth, 28/11/11 (also here)
  49. Marc Stephens issues more threats on behalf of the Burzynski Clinic Orac, Respectful Insolence, 28/11/11
  50. Dear Observer Part 2…………… Nucella, 28/11/11
  51. Threats from The Burzynski Clinic Rhys Morgan, 28/11/11
  52. The Burzynski Clinic Threatens 17 Year Old Blogger Andy Lewis, The Quackometer, 28/11/11
  53. Could the Burzynski clinic fall foul of UK law? Keir Liddle, The Twenty-First Floor, 28/11/11
  54. Won’t Shut Up About #Burzynski? Photograph A TEENAGER’S HOUSE To Silence Them Atheist Feed 28/11/11
  55. Antineoplastons Dr. Robert, Skeptical Health, 28/11/11
  56. A (very brief) Reply From The Observer. Nucella, 28/11/11
  57. Burzynski Cancer Clinic Charges Plenty for Entry to Trial of Quack Treatment and Threatens Children and Families of Critical Bloggers Christian Munthe, Philosophical Comment, 28/11/11
  58. Antineoplastons – taking the piss once again Mike Fowler, Theoretically Speaking, a nature network blog, nature.com, 28/11/11
  59. Mehr von Burzynskis freundlichem Fürsprecher merdeister, 28/11/11
  60. Do Burzynski and dodgy behaviour go hand in hand? anarchic teapot, Short and Spiky, 28/11/11
  61. Burzynski Clinic? Meet the Streisand Effect Scott Gavura, Skeptic North, 28/11/11
  62. Burzynski Clinic: the domain of scoundrels and quacks PZ Myers, Pharyngula, 28/11/11
  63. Dr Burzynski’s crooked antineoplastons Sceptical Letter Writer, 28/11/11
  64. Burzynski clinic Doctor Zorro, 28/11/11
  65. Burzynski and Streisand: Still Dancing thinking is real, 28/11/11
  66. Sceptics show support as cancer clinic threatens teenager Padraig Reidy, Free Speech blog, Index on Censorship, 28/11/11
  67. Burzynski clinic’s quackery Dave Gamble Skeptical Science, 28/11/11
  68. Burzynski noodlemaz, Purely a figment of your imagination, 28/11/11
  69. Representative from Burzynski Clinic sends aggressive legal threats to skeptics who question “antineoplaston” cancer therapy Cory Doctorow, BoingBoing, 28/11/11
  70. Streisand that clinic Ophelia Benson, Butterflies & Wheels, 28/11/11
  71. Clinical Trials for Sale Majikthyse, 28/11/11
  72. Up both of yours, Marc Stephens and Stanislaw Burzynski Skepticat, 28/11/11
  73. Is the Burzynski Clinic Full of Quacks? Laurence A. Moran, Sandwalk, 28/11/11
  74. Everyone has the right to freedom of opinion and expression Kevin Bradshaw, I Blog Every Day, 28/11/11
  75. Threats from The Burzynski Clinic Tony, Coffee Loving Skeptic, 28/11/11
  76. Bloggers Bullied by Burzynski Mark Jones, Good Grief Linus, 28/11/11
  77. “Alternative” cancer clinic threatens to sue high school blogger Phil Plait, Discover Magazine, 28/11/11
  78. The Burzynski Clinic – Another Crank Tries to Intimidate a Blogger Steven Novella, NeuroLogica Blog, 28/11/11 (also here)
  79. Krebs-Scharlatan will Blogger mundtot machen Christian Kahle, WinFuture, 28/11/11 (Google translation)
  80. Belligerent Burzynski rep gets on the wrong side of Rhys Morgan Richard Wilson, Richard Wilson’s blog, 28/11/11
  81. Qui est Stanislaw Burzynski? La terrasse du café, 28/11/11
  82. Who the hell does Marc Stephens think he is? skepticcullen, 28/11/11
  83. Stanislaw Burzynski: can he do what he claims? White Coat Underground, 28/11/11
  84. Texas Medical Board vs Burzynski Vaughan Jones, Ministry of Truth, 28/11/11
  85. wee wee woo waa and the heart string tug jobs Gordie, Ferfuxache, 28/11/11
  86. Boing Boing’s Cory Doctorow Weighs In On Burzynski Clinic’s Marc Stephens Kylie, Sturgess, Token Skeptic, 29/11/11
  87. Burzynski Lawyer Distances Clinic From Threats to Bloggers Martin Robbins, Google+, 29/11/11
  88. The Scientific Method Geoff Coupe, Geoff Coupe’s blog, 29/11/11
  89. For Burzynski, Cancer Is Big Business Dis-Integrated Medicine, 29/11/11
  90. Burzynski The Movie: Hitting you over the head with pseudoscience, just like Burzynski the man Orac, Respectful Insolence, 29/11/11
  91. Skeptics News: Burzynski update Keir Liddle, The Twenty-First Floor, 29/11/11
  92. Burzynski und die Jagd nach Barbara Streisand EsoWatch, 29/11/11
  93. Burzynski Clinic Quackery Update Richer Ramblings, 29/11/11
  94. If it quacks like a troll it’s probably a quack-o-troll Gladly, The Cross-Eyed Bear, 29/11/11
  95. Burzynski Clinic – no evidence, just intimidation Ed Brown, Really, Ed Brown, 29/11/11
  96. The Great Burzynski Caper codenix, 29/11/11
  97. Las amenazas de la clínica Burzynski Angela, escéptica, 29/11/11
  98. Would you kick a dying man? Birmingham Skeptics, 29/11/11
  99. Statement on libel threats to critics of The Burzynski Clinic Sense about Science, 29/11/11
  100. Burzynski blogs: My Master List Josephine Jones, 29/11/11
  101. Stanislaw Burzynski – Another Bullying Quack Skeptico, 29/11/11
  102. Skeptic Park 4: Featuring Rhys Morgan #Burzynski Crispian Jago, Science, Reason and Critical Thinking, 29/11/11
  103. Burzynski Fanatic Threatens Bloggers ‘Round the World, Craig Malisow, Houston Press Blogs, 29/11/11
  104. Why Burzynski matters Ophelia Benson, Butterflies & Wheels, 29/11/11
  105. The Burzynski Cancer Treatment Derek Lowe, In The Pipeline, 29/11/11
  106. Burzynski: naturals not in it Keir Liddle, The Twenty-First Floor, 29/11/11
  107. ‘Alternative Medicine’ Clinic Attempts To Silence Critics Asmodae, Slashdot, 29/11/11

If you know of any new and relevant articles not listed above, then please let me know and I will add them. A comment (or pingback) below should do the trick.**

___________________________________________________

UPDATE 26/11/11

The Observer have confirmed that they are carrying out further research into this story and the clinic and may print this letter.

UPDATE 27/11/11

The Observer have now published the letter mentioned above in an edited form. Details of the editing (and of the emails they have not yet answered) are here.

*UPDATE 27/11/11

The Tales of the Genomic Repairman post, which had been taken down following a ‘cease and desist’ request from a ‘representative’ of the Burzynski clinic is now back online.

**UPDATE 29/11/11

Since the Guardian have now reported this story, I feel the time is right to stop adding new links. You are of course welcome to post links to new articles in comments below.

UPDATE 04/12/11

The Observer readers’ editor has written this column.

93 Responses to Stanislaw, Streisand and Spartacus

  1. Pingback: Controversy surrounding Burzynski’s ‘pioneering’ cancer therapy should be reported in newspapers | Josephine Jones

  2. Pingback: Dear Observer …………… « Nucella's Blog

  3. It’s getting hard to keep with with the support! Good for Andy.

  4. Pingback: The cruelty of the Burzynski Clinic must be stopped. Come on, Marc Stephens, make my day

  5. Pingback: Burzynski Clinic Bullies Bloggers with Legal Threats (Major update) « Doubtful Newsblog

  6. Pingback: On The Burzynski Clinic Issuing Legal Threats Against Bloggers – Support The Streisand Effect | Token Skeptic

  7. Pingback: Taking the piss » Black Triangle

  8. Hi Josephine,

    I’d like to point out, what this M. Stephens has at his past. According to anaximperator.wordpress.com/2011/11/26/is-marc-stephens-really-a-representative-of-burzynski/ during an open mail exchange he wrote textually, addressing himself to a person perfectly unknown to him:

    “You are stubborn which is why god gave you so much pain in your life. God hate ugly as they say. This is also why your comments are filled with ignorance, hate, and lies. you work for the devil now.. Wake up miss cancer patient of the decade. You probably LIED about cancer as well..you need attention.”

    In the end I will be laughing at all of you psychos. Go drink a glass of chemo..on the rocks. You are psycho but at least you have an excuse. Radiation and chemo turned you out..you no longer think with logic.“

    M. Stephens represents himself to be in charge of “Marketing & Sponsorship” of a “Burzyski Patient Group”. Their “Mission Statement”: “„We also provide useful information and emotional support to cancer patients and their families.” Their website is linked by the Burzynski Clinic under „Independent Cancer Foundations and Initiatives” as of 2011/11/27, 11:30 a.m. (UTC +1).

    Well, obviously M. Stephens has no idea about freedom of opinion and one of the off-limits. It’s called: Hate speech.

    Regards, e2m on behalf of die Ausrufer

  9. Pingback: Ein Blogger, Krebs und Radiohead « Die Ausrufer

  10. Thanks e2m, I saw that on anaximperator this morning. It’s just awful.

  11. Pingback: Ducks are nuthin’ but trouble « Short and Spiky

  12. The joint effort of all of us is working. Genomic Repairman’s post at labspaces which was taken down because of the threats is now back on: This is truly a happy Sunday,

  13. Great news! I shall edit my posts accordingly.

  14. Thanks for everyone’s support, our post is back up and we are dismayed that Marc Stephens portrayed and claimed (via email) to be an attorney to us. Sadly, this is what I guess they are resorting to.

  15. Pingback: Dear Observer Part 2…………… « Nucella's Blog

  16. Genomic Repairman – thanks for commenting. It’s great to see your post back up there. I have edited my posts to take this into account.

    For anyone who missed it, here is the email you refer to: http://www.ratbags.com/rsoles/comment/burzynski02.htm

  17. I think we should link to Rhys Morgan’s detailed account of his email encounters – using the link text Burzynski Cancer Clinic

    It needs to be elevated in Google because people considering fringe cancer therapy should read it, imho.

  18. Pingback: Burzynski « Purely a figment of your imagination

  19. Don’t be intimidated by these woo merchants..
    Hey Burzynski before you say “show me the money” how about you defend yourself honourably and “show me the science”..

  20. Pingback: Up both of yours, Marc Stephens and Stanislaw Burzynski

  21. I’ve blogged about this twice thus far:
    I’m Spartacus (allegedly)
    Everyone has the right to freedom of opinion and expression
    I’m no expert, just adding my voice and my support.

  22. Pingback: Belligerent Burzynski rep gets on the wrong side of Rhys Morgan « Richard Wilson's blog

  23. Pingback: Stanislaw Burzynski: can he do what he claims? « White Coat Underground

  24. Not a blog post per se, but skeptics crowd-sourced an interesting reaction in the last few hours. I tweeted this about 4 hours ago, recommending folks vote their displeasure in Web of Trust:

    In just a few hours, over 100 people followed the link in that tweet, and voted on Web of Trust (WOT). Now as you can see here, any of the 28 million people who have WOT installed in their browser will see this if they try to visit Dr. Burzynski’s two websites:

    http://yfrog.com/j2ks4bp

  25. Pingback: For Burzynski, Cancer Is Big Business « An Evidence Based Blog

  26. Pingback: Mehr von Burzynskis freundlichem Fürsprecher « Die Ausrufer

  27. Pingback: The Scientific Method | Geoff Coupe's Blog

  28. Pingback: Burzynski Clinic Quackery Update | Richer Ramblings

  29. Pingback: Burzynski blogs: My Master List | Josephine Jones

  30. Burzynski Clinic Issues Press Release on Legal Threats: http://www.thetwentyfirstfloor.com/?p=3177

  31. Here’s another: http://ogremk5.wordpress.com/2011/11/28/the-burzynski-clinic-scientists-or-con-men/

    Mainly it’s to support and get the word out. I’m particularly depressed because this clown is operating in Texas, but my understanding is that Texas is considering revoking his license.

  32. A couple of posts at http://majikthyse.wordpress.com/ including news of a very interesting letter to the FDA.

  33. Pingback: Burzynski Quackery … some updates, and some good news. « Skeptical Science

  34. Pingback: Burzynski going ka-boom | Pharyngula

  35. Well, obviously M. Stephens has no idea about freedom of opinion and one of the off-limits. It’s called: Hate speech.

    I don’t know where you’re from, but in the U.S. hate speech is protected under First Amendment protections of free speech, and we’re kind of proud of that (but not of our numerous hate speakers).

  36. Pingback: The Burzynski Clinic disavows Marc Stephens but not the legal intimidation of bloggers who criticize its therapy | My Blog

  37. Pingback: E’ solidale anche la custode « Oggi Scienza

  38. Pingback: E’ solidale anche la custode | Svoogle News

  39. For any interested there is a documentary defending the clinic and this guy’s theories on the Documentary Channel;
    http://store.documentarychannel.com/Burzynski-p/1050.htm
    The film appears to have won a 2010 film festival as well

  40. thetwentyfirstfloor.com offline today???

  41. Thanks for 21stF Twitter link. I don’t do Twitter but at least it answered the question. I do occasionally fall for the correlation-causation paranoid conclusion.

  42. Pingback: Bruzynski clinic and antineoplastons – False hope is worse than no hope. « Dubitabam Rationale

  43. Pingback: Stanislaw Burzinsky: Cancer, Lawsuits and Intimidation « the II-I- blog

  44. Pingback: The 21st Floor » Blog Archive » Burzynski: A perfect storm?

  45. Pingback: Marc Stephens Threatens Bloggers On Behalf of Burzynski Clinic, Reaps Whirlwind | Popehat

  46. Pingback: Skeptics Gone Wild | The Demon Haunted World

  47. Pingback: Comment: Thank you, Nature « Short and Spiky

  48. Pingback: Dear Evening Standard, it is immoral to promote the Burzynski Clinic | Josephine Jones

  49. Pingback: News about ORAC issue #75

  50. I’ve written something… I’ve been dealing with my own High Court libel case so have been slow on the uptake. But I’m here to offer my support…

    http://faithfruitcake.blogspot.com/2012/01/marc-stephens-phoney-or-fruitcake.html

  51. Pingback: Burzynski going ka-boom [Pharyngula] | StigmaBot

  52. Pingback: Ducks are nuthin’ but trouble » Short & Spiky

  53. Pingback: Quack rag distributor threatens to sue Singh: relevant links and what you can do | Josephine Jones

  54. Pingback: Colon quacks sue WordPress | Josephine Jones

  55. Pingback: Yet another quack company litigates against its critics | Josephine Jones

  56. Pingback: A Closer Look at Burzynski « we must know

  57. Pingback: The Burzynski legal threats: one year on | Josephine Jones

  58. Pingback: WeightWorld’s woeful SEO work | Josephine Jones

  59. Pingback: Burzynski: in dire need of credibility | Josephine Jones

  60. Pingback: The 21st Floor » Blog Archive » Burzynski: In dire need of credibility

  61. Pingback: The Burzynski Clinic disavows Marc Stephens but not the legal intimidation of bloggers who criticize its therapy – Respectful Insolence

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